December 13, 2013

Puppet show & ice cream social

9 hours

9 hours later and we are DONE!

The difference a few minutes makes


Kidneys are perfect.

I repeat. Kidneys are perfect.

Bladder not so much. Ultrasound showed some thickening of the bladder wall. Urodynamics was...funky. Low functional capacity, problems emptying, incomplete voiding. We are being sent home with a "new regimen" and come back in 6-months for a repeat of the testing. Nothing earth-shattering, but there will be some changes in his life. Dr. Reddy knelt down beside him and said, "Ben, the best thing you can do is listen to your mom because she is going to ask you to do things I've explained to her so we can keep your kidneys healthy."

Urology barfing vs. buttkissing

Well, our new uro (did I mention our former urologist has left us for NY?) is well on his way to both seeing me vomit and winning our hearts. This is our first time seeing him. He just popped in to the room and said, "Hi, I'm Dr. Reddy. I'm afraid I have some bad news."

(Don't barf in front of the specialists, Becca. Don't. Keep it in. You can cry in the shower later tonight. DO NOT BARF.)

"I wanted to tell you myself rather than have the nurses give you the news. I am so sorry, but I have an emergency I have to attend to so it will be a long wait before your appointment." 

Wait...what? What? The wait is the bad news? The wait?

"So...the wait is the bad news?"

"Yes. I am so sorry."

"GREAT! See you later!"

Gotta love that he didn't get the nurses to do his dirty work, but Christ on a bike, man! Time to redefine "bad news" please.

The Summary

New specialist; new doctor to give our near-perfect medical summary to. My current employer offers "Personal Medical Guidance" through the EAP and boy have we used it. Hooked us up with a "medical advocate" who happens to be a cardiologist at Cleveland Clinic. I sent him our rather awesome medical summary and he helped craft it into the near-perfect version it is today.

"Wow, this is fantastic. I wish everyone did this."

"I know."


Saw the orthopedic surgeon who said his lower spine has changed for the worse just a little but everything else is exactly the same as last year. So that's good! We come back in 6-months.

I kind of laughed at the radiology report - "LATERAL SPINAL CURVATURE: 11 degrees of dextrocurvature are measured in the thoracic spine with a rotation element. 34
degrees of levocurvature are measured in the lumbar region. Numerous segmentation anomalies make exact vertebral numbering problematic."

You gotta love it when a radiologist gives up. ;)

Ben is so pleased with his Needle Ninjas and all the fun to be had at the Ronald McDonald House he is absolutely killing me...

"Thank you so much for bringing me here!"

"You're the best mama in the whole world."

"I LOVE my new Ninjas."

"I love you even more than the Ronald McDonald House!"

"Do I have any appointments tomorrow? Darn! So we have to leave tomorrow??"

"This is the best place ever! Thanks for bringing me here."

Needle Ninjas

He got his reward for (as he puts it) "freakin out on the inside instead of the outside."



At 9pm last night we got THE call.

"It's Chris from the Ronald McDonald House Cincinnati. We have a room for you."

Ben was majorly bummed the rooms were booked when we called earlier. He literally jumped up and down with the news. He has a whole agenda here - playroom, video games, movie rental, video games, ice cream social, video games.

And no shots.

He has the "magic cream" on and his toy picked out from the gift shop, so we are as prepared as we can be. Every few minutes he randomly throws himself on the floor and whines, "I don't want a needle!"

First thing on the agenda today? Needles.

December 12, 2013


Done for the day and now it's time for some Chinese food. :)


Hard to detect with the naked eye, Ben has had a complete outfit change. Let's just say after drinking 16oz in a half hour urodynamics didn't have such a dynamic start. Watch your step in the urology waiting area.

The test went okay. Didn't empty completely which isn't good, but we will know more tomorrow once we meet with the urologist. New urologist. The nurse doing the testing said they are all "in mourning" about Dr. Alam leaving. Called him "brilliant"'re doing something right when your nurses like AND respect you.


Bottoms up!

The first 16oz of clears are officially done!

Ho ho hospital

It's everyone's favorite time of year ... the annual specialistpalooza!

3 X-rays
2 ultrasounds
Orthopedic surgeon
General surgeon


December 07, 2013